Thankfully, the Pediatric Retinal Research Foundation (PRRF) has spent the last thirteen years investing in research specific to rare pediatric retinal diseases and providing community support resources to families affected by diseases causing pediatric blindness.
PRRF’s Hope for Vision Initiatives
PRRF was founded to support the outstanding research outcomes of the Vision Research ROPARD Foundation (VRRF), the nation’s first organization dedicated to eliminating problems of low vision blindness in children caused by premature birth and other retinal diseases.
PRRF annually awards grants to researchers at Oakland University’s Pediatric Retinal Research Lab to pursue new therapies and cures for pediatric retinal diseases. PRRF also sponsored the world’s first Ophthalmic Biobank, which accepts tissue samples from retinal disease patients that are sequenced and aid researchers in learning more about the diseases.
Scientific research isn’t PRRF’s only mission. It supports affected families with an annual free Family Connection Conference that provides research updates and connection opportunities. In addition, a group of visually impaired young adults hosts PRRF’s “Through Our Eyes” podcast to share their experiences navigating high school, college, and careers with actionable tips and strategies. Finally, the PRRF website provides robust informational resources to help families and loved ones at any stage of their rare disease journey.
Walking To Support PRRF’s Hope for Vision
Rain’s Show Cause social responsibility effort for 2024 focuses on kids from birth to adulthood. We proudly supported the Pediatric Retinal Research Foundation’s 6th Annual Hope for Vision Walk on September 22, 2024, to benefit their vital research efforts and essential programs.
